Monday, May 25, 2020
I have a boyfriend
Thursday, May 21, 2020
MONTAWAAAANOW?
I mean lets be real Autism moms all have a little quirky to deal with the quirkiness ya know? What I discovered was, I was not living fearlessly in raising my boys, as I would have liked. I had to do some real soul searching and fast because what I was discovering as I read more and more articles, was that I was the one holding my sons back. WHAT A HUGE REALITY CHECK. Me, a seasoned RBT, who literally could take a punch to the face and not blink, WAS A FRAUD to my initial perception of what I felt my parenting style was. I fixed all their meals, I cleaned up behind them, I controlled every aspect of everything they did because I feared they would either hurt themselves or wouldn’t have their needs met. The worse part about all of this was at the end of everyday I would be exhausted, stressed, and depleted of any memory of anything they had learned. I mean seriously, I couldn’t think of one, just a singular thing that will make my children more independent future adults.
One day I woke up. It
was seriously like lightning struck my core. My sweet husband has always made
it a point to apply pressure to the boys, while I sat back on the verge of
tears out of fear that they may fail. It was time to cut the maid apron off and
allow my children to do what they are naturally capable of. We started slow
with me fixing one meal for everyone. I had made habit of fixing the same meals
each one would like. I forged forward with giving them the experience of trying
things that none of us knew if they liked or not because they were never given
the opportunity (by me not placing it on their plate) to try. We left their
desert in the center of the table and set the standard of bites to access it
usually 3 and always with something on their plate that they did enjoy and was
familiar to them. Success did not come easy from this. I remember a few nights
crying in my bathroom as I felt like Cinderella’s step-mama who didn’t let her
go to the ball when they were denied their desert. As time went on we incorporated having them
help prepare meals, and setting the table with glass, GLASS cups and plates.
They became responsible for restoring their eating area, scraping their plates,
and placing their dinner items in the dish washer. EVEN MY THEN 2 YEAR OLD! They
were so in their element helping me cook and bake. They eventually graduated to
baking things for their dad, because if you haven’t figured out by now he’s the
MVP of the house. Shortly after the chef hats came lessons in vacuuming and
making their beds. We now have so many things that they do as far as chores, my
list would take forever. We use Montessori principles in our house, WE ARE a
Montessori family. I enjoy that the boys are learning to care for themselves,
each other, and their items. I love that my house is tidy and I’m not exhausted
at the end of the day! All it takes is a leap of faith, patience, and the
knowledge that something may get broken along the way. All the hard work is in
the beginning, but after practice and repetition I can see a colossal
difference in their confidence and independence. So, what’s your first step?
Wednesday, May 20, 2020
The Ole’ Car Trick
Tuesday, May 19, 2020
AUTISMOMWHAAAAA?????
Autismomgicians. That was the title
I have given myself and others like me.
People always laugh when I tell them the statistics of having a son with
Autism. Not in a hurtful, jokes on you, poking fun way but in complete and
utter amazement. I worked in the field with individuals with Autism and
different special needs in college for a total of 3 years before the birth of
my oldest son. The response when people
find this information out a simple, puzzled, “Huh.” Yes I am one extremely
lucky lady. In 2018 the CDC states that 1 in 59 children, 1 in 39 boys, and 1
in 151 girls, will be diagnosed with Autism Spectrum Disorder. I am blessed to
call myself the mother of 2 out of soon to be 4 sons who are diagnosed with
Autism.
The puzzle concept displays itself in our home
with all the colorful differences that come with this diagnosis, ASD. On one
hand, I have my middle son who could read without being taught, who needs to be
engaged with mental stimulation as he is deeply passionate about learning and
art, who cries while listening to Vivaldi and wants to cook. The child is so
independent and self motivating that even my husband and I laugh because, well
to put it bluntly, he thinks we are slackers at points in his very busy day and
he is not shy to point it out,” You stink, I will kiss you after you brush your
teeth!”…yes that kid. On the opposing end I have my beautiful wild one, my
oldest child. He is limited voluntarily verbal; we have given him the title of
being my angry positive motivator because if you didn’t know him, you would
think that when he shouts “Hooray! You did it!” into his hands he is cheering
you on with all his might, but the truth is…those are not so kind words in his “moments”.
He gives the best hugs, he has the brightest smile I have ever seen in my life,
but the kid will need someone to feed him grapes from a vine, fan him, and
force him to take a shower for the rest of his life. We hope that his sweet
beat boxing skills make him rich because he is not motivated at all… unless you
have skittles, then maybe, yes he’s that kid.
I guess I am telling you all of
this to explain my title and to explain that when speaking of a child on the
spectrum we are still speaking of a child, beautiful, unique, and different. In
the world of parenthood sometimes we get so busy with everything that surrounds
our crazy beautiful day. Sometimes the diagnosis becomes a label of what will or
a cloud hanging over us blocking out this beautiful light that’s surrounds us
everyday. Everything becomes so serious. It becomes this life size Tetris game
where comparisons to other families and kids seems like the common mistake to
make the puzzle fit together. What happens if, what do we do when, should they
be doing this by now? We always think of how much our children with ASD need us
to figure things out for them, and while they do need us a lot, can you
honestly say that you stopped to think of how much they do for us?
Having two sons on the spectrum
(Autism Mom or Autismom), has made me more patient than I could ever imagine. In
fact, I am noticing that I would gladly face the challenges that they bring to
the table everyday, than that lovely 2 year old stage my youngest
“Neurotypical” developing child just metamorphosed from. I laugh at things
society says are rules for example, no glitter or bright eye shadow after age
16. I engage in self-stimulating behaviors such as getting close to that same
glitter on the floor to see the light reflects differently. I understand the
meltdown of being presented Vanilla ice cream, after being told it’s Cookie
Dough. I have these magical gifts (Magician or gician) of understanding and
more because I have the joy of being the mama of two boys on the spectrum who
teach me to look at things differently and challenge reason. My greatest
lessons come in the moments I wonder why they engage in a certain behavior, try
it for myself, and realize how much I have missed out on, I don’t know, bending
my fingers in a dragon shape and flying it close to my eyes. I am a mold bender
because of them. I live theatrically because in our house \ we don’t let it (Autism)
define us; we say what Autism looks like and it is laughter, excitement,
learning, and growing. Our anxieties, nor fears, nor questions about the future
will change the future, therefore we choose to be fearless and dive both feet
in, because while we didn’t chose Autism I would choose to be an Autismomgician
any day.
No one speaks "BLINK" like mama!
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